William Update

I called William's ENT today as I had a few questions. He is still drooling up a storm, his cough is still bad as ever and his boogies are BACK :( SO I talked to the nurse and then she said she would have the doc call me back. Dr. H called me back and was oh so nice :) She told me William has Bacillus Bacteria growing in his nose. She also stated A. It's not a common one she sees and B. Not something that is generally found in the nose. Gee...not common, yup that is our boy. He has not been normal since he was born :) Only kidding, but why does none of this surprise me. Why can't anything be easy! He will now be on a strong antibiotic for 14 days 3 times a day! OH let the pooping begin again! UGG! To make matters worse the pharmacy didn't have it today-not a common antibiotic they carry and they say it taste and smells NASTY! So I'm having them flavor it to see if that helps. We are getting 4(yes 4!) bottles of the nasty stuff. We will flavor each one separately and see which one William likes best. I am so excited about starting this crud! My only hope is this is the trick that will knock this nasty stuff out of Williams body! We get to do a probiotic too-in hopes of helping in the poop department. Dr. H is hoping once the bacteria is under control-the congestion will stop- so he can breath better which will then stop the drooling. Hopefully it will stop the post nasal drip too and then the coughing. We shall see....We go for a checkup in 10 days to see how the treatment is working.


On the Mark front. His labs came back with some hormone levels low-so after his MD went to a new conference-he is now on hormone replacement. We are going to try it for 2-4 weeks and see how he feels. We will re-test for Lyme as well then (as it is super tricky to find). If we still are not sure as to what is triggering all of this-he will then go to a Rheumatologist. The more Lyme research we do the more confident we feel this is it. It is super tricky to diagnosis so we will see. I am not a MD though so we will do as she says :)

Be sure to scroll down to see the surgery update post below. It posted a bit down on the list tonight. Thanks again for all the calls and e-mails. We appreciate it!

Easter

Easter started off with our Friday playgroup. We had an Easter party at Heather's. The kiddos had their 1st egg hunt. William was totally not into it! He wanted to play instead. He didn't quite get the egg concept yet. On Easter we started off with church and then went home and got ready for dinner. We invited our neighbors Lorna and Anita and Mike and Leslie and their son Evan. 2 moms from my playgroup were going to be alone so we invited them too! We had a great time with friends and the kiddos had fun playing. We had another egg hunt and William didn't get it then either. :) Next year he should have more fun with it.

Amber...


Evan...


Peyton..


William....


The eggs were only out for about 5 minutes (so the hot sun wouldn't melt the m & m's ) and the ants had already started to invade! Florida egg hunt I guess :)

Playground fun

2 weekends ago we went to the playground in Lakeland again. We brought our neighbor Lorna with us this time. We had a great time and William got his first ouchie!


Sea-saw fun...

On his favorite thing!

Crawling throught the tunnel...

Making music...

Roller slide fun!



Mommys dumb move....this was after I fell off the "toddler" sea-saw

Sliding down head 1st...didn't go so well when he tried it the 2nd time on a different slide

Checking out Lorna....

Williams 1st boo-boo. Trying to go head 1st again....He had a boo-boo above his lip and on his chin...

On the sea-saw with mommny and daddy

Tunnel fun....



Lorna and I after we slid down the hill...our bottoms were burning :)

Surgery Update

Hi All, after calling the Surgery Center this am-and having them speak with the MD-William had his surgery around 10:30 this am. We were there shortly after 9 and they fit him in. His MD was not to happy with the whole mess up and had a little chuckle after she figured out who they forgot :) The whole thing went pretty smoothly and only took about 25-30 minutes! His adenoids were blocking 75% of his nose-so they needed to come out. He did well, but woke up a little MAD! The anesthesia he received made him a very cranky man! He screamed for quite awhile and finally fell asleep in the car. I was beg. to regret the surgery when I heard him screaming! Thankfully he has done pretty well at home. We gave him some pain medicine and he is resting at this time. He is on another round of antibiotics for 10 days and we will have a follow up doctors appt in 3 weeks. His allergy testing will take 7-10 days to come back. Need to send out a special thank you for Jaime for the awesome dinner she brought over to us today. It was a great thing to not worry about dinner! I am so grateful for my awesome friends! Thanks for the calls and e-mails checking up on our little man too! Thats all for now, we'll keep you updated on any changes.

Surgery Update

Hi All-We are pretty sure William will NOT be having surgery in the morning. Unfortunately we never received a phone call from the surgery center on Friday. I called around 2 (because we still hadn't heard anything) and I was told "Mam, they make their calls between 4 and 5 pm" OK then....we'll wait some more. The phone never rang again and when we went to call the Surgery Center/ENT-of course they were CLOSED by then! To say we are unhappy is an understatement! William needs this surgery and we want it over with! He has no idea what he is in for :) The MD only does surgeries once a week....so not totally sure what is going to happen. I am setting my alarm for 6am to call the surgery center-if they have no idea, then it's off to call the ENT at 8 when they open. I feel bad for whoever answers the phone tomorrow-This will not be the voice of a happy women! We'll keep you posted with whatever happens. Pray for surgery tomorrow or ASAP if not.

I leave you with some bathtub fun pics! He sure does love the bath!

Results

We still hadn't heard anything from the nurse....so Mark called this am. No nurse to help us, but the lady did say she would look in his chart to see if she saw anything. She was able to see he was negative for Lyme (YEAH and bummer! ) and all looked good. She also told us they mailed us a letter. Could the lovely nurse not CALL us back and tell us that! We will have words with a manager on Monday. This whole thing was handled terribly by that nurse. Low and behold we got the letter in the mail today. Echo was normal and Lyme negative. I have no clue what is next. I think the NP wants him to go to a Rheumatogolist next. I am happy with good results but bummed at the same time. Why does he feel so bad? I guess we take it 1 day at a time!

Disney Part 2

I'm sure you were all waiting for part 2....so here it is! We went to Magic Kingdom the 2nd day. It was SUPER busy and we waited in lines all day long! It started out rough as William was still on his antibiotics and his belly was not liking them! We had a HUGE mess to clean up before we could go in. He then gave us a second present after lunch. He seemed to get it out of his system and was better the rest of the day. Thank goodness we had no more clothes! WIlliam liked the rides and the knobs on them but was not fond of WAITING for them. What adult likes to wait in long lines! :)

Walking down Main Street....






Cheesing it up....


Waiting in line for Mickey and Minnie. Auntie Al and Chris had to get some loving from them too!






In line for Dumbo. Auntie Al and Mommy went with William. Auntie Jen was in front of us!








Time for the carosel! William liked this alot and it was great because there was no line for this ride! :)




Believe or not, AJ and I are on this-we were way in the back!


William was over pictures by this point, so the adults got in on it!




William watching the Spectromagic parade. By far Williams FAVORITE part of the day. He loved the lights and music. He managed to stay awake for it too!




A very tired William....he feel asleep during the fireworks!


We'll be going back in April when Marks brother and family is here. Hopefully we'll be able to do a few more rides that we didn't get a chance to do.

No News

No news on Mark.....NOT HAPPY! Mark called his doctor on Tuesday for news, the nurse said they didn't have his echo or blood work back. "We'll call you as soon as we have the results Mr. Fellows". Mark then called the echo place and asked if they had the results. They did (of course!) and said they would fax the results over again to the office. His lab work was still pending we found out. Still hear nothing from the nurse on Tuesday after the echo was faxed. Mark called the lab today to ask about results and they faxed them over to the office yesterday! Mark left a love message on the nurses voicemail today. To say we are frustrated is an over statement. This nurse has given us nothing but trouble. Its a good thing we LOVE our NP or I think after all of this we would be looking for someone new. It's not like Mark is feeling TERRIFIC and we are waiting for normal results. We want to figure this out! I hope and pray we get a call tomorrow or else I think this nurse might have to turn into SUPER B*@#*!! We are over it! Sorry All! :) We'll let you know if we hear anything.

On the William front....he's starting to get congested again and boogers are returning along with iffy sleep. We may be calling for more antibiotics sooner then later. We shall see!