Tuesday, April 28, 2009

William Update

I called William's ENT today as I had a few questions. He is still drooling up a storm, his cough is still bad as ever and his boogies are BACK :( SO I talked to the nurse and then she said she would have the doc call me back. Dr. H called me back and was oh so nice :) She told me William has Bacillus Bacteria growing in his nose. She also stated A. It's not a common one she sees and B. Not something that is generally found in the nose. Gee...not common, yup that is our boy. He has not been normal since he was born :) Only kidding, but why does none of this surprise me. Why can't anything be easy! He will now be on a strong antibiotic for 14 days 3 times a day! OH let the pooping begin again! UGG! To make matters worse the pharmacy didn't have it today-not a common antibiotic they carry and they say it taste and smells NASTY! So I'm having them flavor it to see if that helps. We are getting 4(yes 4!) bottles of the nasty stuff. We will flavor each one separately and see which one William likes best. I am so excited about starting this crud! My only hope is this is the trick that will knock this nasty stuff out of Williams body! We get to do a probiotic too-in hopes of helping in the poop department. Dr. H is hoping once the bacteria is under control-the congestion will stop- so he can breath better which will then stop the drooling. Hopefully it will stop the post nasal drip too and then the coughing. We shall see....We go for a checkup in 10 days to see how the treatment is working.


On the Mark front. His labs came back with some hormone levels low-so after his MD went to a new conference-he is now on hormone replacement. We are going to try it for 2-4 weeks and see how he feels. We will re-test for Lyme as well then (as it is super tricky to find). If we still are not sure as to what is triggering all of this-he will then go to a Rheumatologist. The more Lyme research we do the more confident we feel this is it. It is super tricky to diagnosis so we will see. I am not a MD though so we will do as she says :)

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